Today I spent most of the day at the Children's Hospital. This morning Sebastian wasn't himself and was having several episodes of eye rolling. I decided to take him straight to emergency to get to the bottom of what was going on. After a long wait the registrar witnessed some of his seizures and decided to increase his medication to the full amount over 3 weeks. This is so upsetting because we have been weening him off this medication for 6 months and we were almost done. Now we are back to square one. The scariest thing is that this medication may not work and if that's the case we will have to go through all the trials of medication with bad side effects that don't do anything to stop the seizures. This has been a bad year for us but as I said to Diego, it can only get better!
On a positive note Sebastian mimicked every letter in the alphabet (except the letter T) after the brainy baby DVD. How exciting that he is learning the alphabet. I thought it would never happen!
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its so funny that he didnt mimic the letter T as "tea" is one of his favourite things to point out and say! it's funny how the mind works!
ReplyDeleteI'm sorry to hear that Sebastian has been having the seizures again. I can only imagine how you both must feel. I so wish you did not have to face these challenges in your life. But you have too see them as positive, don't loose hope. I strongly believe God only chooses extra special people for these challenges because to see you all as a family and support each other as you all do i see a very loving, caring and strong family unit that WILL get through this.
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